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  2. Defining Accessibility & Accessible Research Companion Site

Defining Accessibility & Accessible Research Companion Site

The full content of this module is also available as an Accessible PDF (1.3MB).

Video

Bailie, J., Fortune, N., Plunkett, K., Gordon, J., & Llewellyn, G. (2023). A call to action for more disability-inclusive health policy and systems research. BMJ Global Health, 8(3), 1鈥7.

Lau, S., Nirmalanathan, K., Khan, M., Gauthier, C., Maisel, J., & Novak, A. (2020). A Canadian Roadmap for Accessibility Standards. Canadian Standards Association, (November). Retrieved from

World Health Organization (2023). Disability. Retrieved from

Canadian Institute of Health Research. (2022). Findings from CIHR Environmental Scan on Accessibility and Systemic Ableism in Research Funding Systems 2021-2022. Retrieved from

Honisch, S. S., & Hill, G. T. (2022). Accessibility in Research鈥: From Design to Dissemination.

Olsen, J., Griffiths, M., Soorenian, A., & Porter, R. (2020). Reporting from the Margins: Disabled Academics Reflections on Higher Education. Scandinavian Journal of Disability Research: SJDR, 22(1), 265鈥274.

St. John, B. M., Hickey, E., Kastern, E., Russell, C., Russell, T., Mathy, A., Ausderau, K. K. (2022). Opening the door to university health research: recommendations for increasing accessibility for individuals with intellectual disability. International Journal for Equity in Health, 21(1), 1鈥13.

Swenor, B. K., Munoz, B., & Meeks, L. M. (2020). A decade of decline: Grant funding for researchers with disabilities 2008 to 2018. PLOS ONE, 15(3), e0228686鈥揺0228686.

Videos

CAST (2018). Universal Design for Learning Guidelines version 2.2. Retrieved from

Center for Universal Design. (1997). The principles of universal design. Retrieved from

Croft, L., Harrison, E., Grant-Young, J., McGillivray, K., Sebring, J. C., & Rice, C. (2024). Toward access justice in the academy: Centring episodic disability to revision research methodologies. International Journal of Qualitative Methods, 23, 16094069241227075.

Fraser-Barbour, E., Robinson, S., Gendera, S., Burton-Clark, I., Fisher, K. R., Alexander, J., & Howe, K. (2023). Shifting power to people with disability in co-designed research. Disability & Society, 1鈥22.

Honisch, S. S., & Hill, G. T. (2022). Accessibility in Research鈥: From Design to Dissemination.

Katz, J. (2018). Ensouling our schools: A universally designed framework for mental health, well-being, and reconciliation (Vol. 3). Portage & Main Press.

Rios, D., Magasi, S., Novak, C., & Harniss, M. (2016). Conducting accessible research: Including people with disabilities in public health, epidemiological, and outcomes studies. American Journal of Public Health, 106(12), 2137鈥2144.

Strnadov谩, I., Dowse, L., & Watfern, C. (2020). Doing Research Inclusively: Guidelines for  Co-Producing Research with People with Disability. DIIU UNSW Sydney.

Additional Resources

Videos

 

 

 

 

 

 

 

Bailie, J., Fortune, N., Plunkett, K., Gordon, J., & Llewellyn, G. (2023). A call to action for more disability-inclusive health policy and systems research. BMJ Global Health, 8(3), 1鈥7.
 
Baker, J., & Vasseur, L. (2021). Inclusion, Diversity, Equity & Accessibility (IDEA) Good Practices for Researchers. Canadian commission for UNESCO.
 
Brown, L., & Boardman, F. K. (2011). Accessing the field: Disability and the research process. Social Science and Medicine, 72(1), 23鈥30.

Browne, J., & Dorris, E. R. (2022). What Can We Learn From a Human-Rights Based Approach to Disability for Public and Patient Involvement in Research? Frontiers in Rehabilitation Sciences, 3(April), 1鈥6.

Canadian Institute of Health Research. (2022). Findings from CIHR Environmental Scan on Accessibility and Systemic Ableism in Research Funding Systems 2021-2022. Retrieved from

CAST (2018). Universal Design for Learning Guidelines version 2.2. Retrieved from

Center for Universal Design. (1997). The principles of universal design. Retrieved from

Croft, L., Harrison, E., Grant-Young, J., McGillivray, K., Sebring, J. C., & Rice, C. (2024). Toward access justice in the academy: Centring episodic disability to revision research methodologies. International Journal of Qualitative Methods, 23, 16094069241227075.

De Picker, M. (2020). Rethinking inclusion and disability activism at academic conferences: strategies proposed by a PhD student with a physical disability. Disability and Society, 35(1), 163鈥167.
 
Dee-Price, B. J. M., Hallahan, L., Nelson Bryen, D., & Watson, J. M. (2021). Every voice counts: exploring communication accessible research methods. Disability and Society, 36(2), 240鈥264.
 
Frankena, T. K., Naaldenberg, J., Cardol, M., Garcia Iriarte, E., Buchner, T., Brooker, K., 鈥 Leusink, G. (2019). A consensus statement on how to conduct inclusive health research. Journal of Intellectual Disability Research, 63(1), 1鈥11.

Frankena, Tessa Kim, Naaldenberg, J., Cardol, M., Linehan, C., & van Schrojenstein Lantman-de Valk, H. (2015). Active involvement of people with intellectual disabilities in health research - A structured literature review. Research in Developmental Disabilities, 45鈥46, 271鈥283.

Fraser-Barbour, E., Robinson, S., Gendera, S., Burton-Clark, I., Fisher, K. R., Alexander, J., & Howe, K. (2023). Shifting power to people with disability in co-designed research. Disability & Society, 1鈥22.

Greenhalgh, T., Hinton, L., Finlay, T., Macfarlane, A., Fahy, N., Clyde, B., & Chant, A. (2019). Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot. Health Expectations, 22(4), 785鈥801.

Honisch, S. S., & Hill, G. T. (2022). Accessibility in Research鈥: From Design to Dissemination.

Katz, J. (2018). Ensouling our schools: A universally designed framework for mental health, well-being, and reconciliation (Vol. 3). Portage & Main Press.
 
Kenny, N., Doyle, A., & Horgan, F. (2023). Transformative Inclusion: Differentiating Qualitative Research Methods to Support Participation for Individuals With Complex Communication or Cognitive Profiles. International Journal of Qualitative Methods, 22(March).

Khubchandani.A., A. (2012). Guidelines for assessment of and intervention with persons with disabilities. American Psychologist, 67(1), 43鈥62.

Kidney, C. A., & McDonald, K. E. (2014). A toolkit for accessible and respectful engagement in research. Disability and Society, 29(7), 1013鈥1030.

Lau, S., Nirmalanathan, K., Khan, M., Gauthier, C., Maisel, J., & Novak, A. (2020). A Canadian Roadmap for Accessibility Standards. Canadian Standards Association, (November). Retrieved from

Loomes, G. (2018). Researching about us without us: Exploring research participation and the politics of disability rights in the context of the Mental Capacity Act 2005. Journal of Medical Ethics, 44(6), 424鈥427.

Mattison, S. M., Gin, L., Abraham, A. A., Moodie, M., Okanlami, F., & Wander, K. (2022). Community voices: broadening participation in Science, Technology, Engineering, Mathematics, and Medicine among persons with disabilities. Nature Communications, 13(1), 1鈥4.

McDonald, K. E., Gibbons, C., Conroy, N., & Olick, R. S. (2022). Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement. Journal of Applied Research in Intellectual Disabilities, 35(1), 170鈥178.

Meyers, A. R., & Andresen, E. M. (2000). Enabling our instruments: Accommodation, universal design, and access to participation in research. Archives of Physical Medicine and Rehabilitation, 81(12 SUPPL. 2), 5鈥9.

National Disability Authority. (2002). Guidelines for Including People with Disabilities in Research. Retrieved from

Njelesani, J., Mlambo, V., Denekew, T., & Hunleth, J. (2022). Inclusion of children with disabilities in qualitative health research: A scoping review. PLoS ONE, 17(9 September), 1鈥19.

Paramasivam, A., Jaiswal, A., Minhas, R., Wittich, W., & Spruyt-Rocks, R. (2021). Informed Consent or Assent Strategies for Research With Individuals With Deafblindness or Dual Sensory Impairment: A Scoping Review. Archives of Rehabilitation Research and Clinical Translation, 3(2), 100115.

Olsen, J., Griffiths, M., Soorenian, A., & Porter, R. (2020). Reporting from the Margins: Disabled Academics Reflections on Higher Education. Scandinavian Journal of Disability Research: SJDR, 22(1), 265鈥274.

Ontario Human Rights Commission (n.d.). Glossary of human rights terms. Retrieved from

黑料吃瓜资源. (2019). 黑料吃瓜资源 facilities accessibility design standards (QFADS).

Rios, D., Magasi, S., Novak, C., & Harniss, M. (2016). Conducting accessible research: Including people with disabilities in public health, epidemiological, and outcomes studies. American Journal of Public Health, 106(12), 2137鈥2144.
 
Rix, J., Carrizosa, H. G., Seale, J., Sheehy, K., & Hayhoe, S. (2020). The while of participation: A systematic review of participatory research involving people with sensory impairments and/or intellectual impairments. Disability and Society, 35(7), 1031鈥1057.
 
Shariq, S., Cardoso Pinto, A. M., Budhathoki, S. S., Miller, M., & Cro, S. (2023). Barriers and facilitators to the recruitment of disabled people to clinical trials: a scoping review. Trials, 24(1), 1鈥13.
 
Spivakovsky, C., McVilly, K., Zirnsak, M. T., Ainsworth, S., Graham, L., Harrison, M., 鈥 Genat, A. (2023). The ontology and epistemology shaping our understanding of inclusion: A critical review of the research literature on disability and inclusion. Journal of Policy and Practice in Intellectual Disabilities, (May), 1鈥16.
 
St. John, B. M., Hickey, E., Kastern, E., Russell, C., Russell, T., Mathy, A., Ausderau, K. K. (2022). Opening the door to university health research: recommendations for increasing accessibility for individuals with intellectual disability. International Journal for Equity in Health, 21(1), 1鈥13.
 
Strnadov谩, I., Dowse, L., & Watfern, C. (2020). Doing Research Inclusively: Guidelines for  Co-Producing Research with People with Disability. DIIU UNSW Sydney.
 
Swartz, T. H., Palermo, A. G. S., Masur, S. K., & Aberg, J. A. (2019). The Science and Value of Diversity: Closing the Gaps in Our Understanding of Inclusion and Diversity. Journal of Infectious Diseases, 220(Suppl 2), S33鈥揝41.

Swenor, B. K., Munoz, B., & Meeks, L. M. (2020). A decade of decline: Grant funding for researchers with disabilities 2008 to 2018. PLOS ONE, 15(3), e0228686鈥揺0228686.

Thompson, T., Coleman, J. M., Riley, K., Snider, L. A., Howard, L. J., Sansone, S. M., & Hessl, D. (2018). Standardized Assessment Accommodations for Individuals with Intellectual Disability. Contemporary School Psychology, 22(4), 443鈥457.

Vega-C贸rdova, V., 脕lvarez-Aguado, I., Jenaro, C., Spencer-Gonz谩lez, H., & D铆az Araya, M. (2020). Analyzing Roles, Barriers, and Supports of Co-researchers in Inclusive Research. Journal of Policy and Practice in Intellectual Disabilities, 17(4), 318鈥331.

Williams, A. S., & Moore, S. M. (2011). Universal Design of Research: Inclusion of Persons with Disabilities in Mainstream Biomedical Studies. Sci Transl Med., 82(3).

World Health Organization (2023). Disability. Retrieved from